Additional links
 

Purchase prostate cancer pins for yourself and your group

Use the Prostate Cancer Glossary at Phoenix 5

We are always interested in improving -

If you have suggestions for additions, changes or corrections to this page please send an e-mail to resources@pcc-nj.org Include the web address of any suggested additions that you think will be of general interest to PCa patients.

I  Some important information for new prostate cancer patients

• A Primer on Prostate Cancer Part I - Written and compiled by Donna Pogliano
  Web Link:  http://www.phoenix5.org/Basics/DPprimer0918.html

  A Primer on Prostate Cancer Part II Web Link:  http://www.phoenix5.org/Basics/DPprimer0918a.html

• Prostate Pointer's New Patient Guide - Prostate Pointer's excellent guide designed to assist new patients in answering the "What do I do now?" question after being notified that they have PCa.
  Web Link: http://www.prostatepointers.org/newlydx.html
• Welcome Newcomer - Ron Koster's new PCa patient email message. Appears frequently on the Seedpods mail list. Hint: both user name and password are pp.
  Web Link: http://www.prostatepointers.org/pods/2003/Jun/20/0005.html
• Staging of prostate cancer - Explanation of T Stages.
  Web Link: http://www.phoenix5.org/staging.html

  Prostate cancer staging diagrams - Diagrams of the T stages. Web Link:  http://www.phoenix5.org/Basics/stagingfda.html

• Grading of prostate cancer - Explanation of the Gleason Grades
  Web Link: http://www.phoenix5.org/grading.html
• Partin Tables - Are used to do a statistical estimate as to whether the cancer is confined within the prostate, is outside the prostate, in the seminal vesicles or in the lymph nodes. These tables are based on 2001 data from the John Hopkins Brady Cancer Institute.
  Web Link: http://urology.jhu.edu/Partin_tables/index.html
• Explanation of types of treatment from the American Cancer Society.
  Web Link: http://www.cancer.org/docroot/ETO/ETO_1.asp
• Glossary of markers and tests for PCa which may be ordered by the doctor.
  Web Link: http://www.prostate-help.org/camark.htm
• Phoenix5 Prostate Cancer Glossary compiled by Robert Young
  Web Link: http://www.phoenix5.org/glossary/glossary.html
• Some prostate cancer patients and their stories - Patients recounting their PCa treatments.
    Radioactive Seeds:
    Web Link: http://www.prostatepointers.org/seedpods/chron.html
    Univ. of Pittsburgh Patients:
    Web Link: http://www.upmccancercenters.com/prostate/ptinterviews.html
    ICARE - Patient experiences with prostate cancer therapies.
    Web Link:  http://www.icare.org/ctr/experiences.htm
• You Are Not Alone Now Network – This site’s aim is to provide comfort to men diagnosed with prostate cancer being mindful that it is the individual's choice of the path he decides to follow.
  Web Link: http://www.yananow.net
• Some famous people with prostate cancer.
  Web Link: http://www.prostatepointers.org/prostate/per.html
  
  

  II   Internet sites with lots of PCa information:

• Aubrey Pilgrim's on-line book - "A Revolutionary Approach To Prostate Cancer" read it on-line at your leisure.
  Web Link: http://www.prostate-help.org/cabooks.htm
• PSA Rising - Jacquie Strax's online prostate cancer magazine
  Web Link: http://psa-rising.com/index.html
• Excerpts from books about prostate cancer from Phoenix5.
  Web Link: http://www.phoenix5.org/books/books.html
• Andy Grove's first person Fortune Magazine article about his treatment decisions.
  Web Link: http://www.phoenix5.org/articles/Fortune96Grove.html
• Prostate Cancer Foundation - Was CapCure founded by Mike Milken.
  Web Link:  http://www.prostatecancerfoundation.org

  On-line copy of the CapCure monograph on Nutrition and Prostate Cancer Web Link:  http://www.kintera.org/AccountTempFiles/cf/{B03F0A9B-1CFE-45E8-8A8D-EAA620CC252F}/CAPCURE_MONOGRAPH.PDF

• National Prostate Cancer Coalition - Advocates for Prostate Cancer patients. Promoting awareness, outreach and advocacy. Web Link:  http://www.4npcc.org
• PAACT - Patient Advocates for Advanced Cancer Treatments.
  Web Link: http://www.paactusa.org
• Patients Helping Patients - Don Cooley's site devoted to Prostate Cancer. More information here than any other single place on the Internet.
  Web Link: http://www.prostate-help.org
• Phoenix 5 - Robert Young's extensive site devoted to Prostate Cancer. This site is very extensive and easier to use than Don Cooley's site above.
  Web Link: http://www.phoenix5.org
• Medline Plus - The National Institutes of Health site dedicated to Prostate Cancer.
  Web Link: http://www.nlm.nih.gov/medlineplus/prostatecancer.html
• Mayo Clinic's Health Decision Guide - Provides a guide to assist in the treatment decision process for early stage Prostate Cancer
  Web Link:  http://www.mayoclinic.com/takecharge/healthdecisionguides/prostatecancer/index.cfm
• Memorial Sloan Kettering's Prostate Cancer Treatment Decision Guide - A Prostate Cancer Decision Nonogram developed by MSK to assist patients, in consultation with their physicians, to decide among the major treatment choices for Prostate Cancer.
  Web Link:  http://www.mskcc.org/mskcc/html/10088.cfm
• Prostate Calculator provides an automated tool to calculate the probabilities of cancer spreading outside the prostate, to the lymph nodes and recurrence after surgery. This is an experiment in using data like the Partin tables together with neural networks to assist in the decision making process.
  Web Link: http://www.prostatecalculator.org
• Prostate Cancer Profiler - treatment decision support tools. Assistance in understanding treatment options and potential side effects.
  Web Link: http://www.cancerfacts.com
  PCRI - The not for profit Prostate Cancer Research Institute providing excellent advice on-line and through their newsletters.
  Web Link: http://www.prostate-cancer.org

Back copies of their "PCRI Insights" newsletter: Web Link: http://www.prostate-cancer.org/resource/insights.html Dr. Strum's thoughts on how to properly stage PCa. Suggestion is to concentrate on determination of organ confined or non-organ confined disease before selecting a treatment that may fail if the disease is not organ confined. Web Link: http://www.prostate-cancer.org/education/staging/correct.html

• PC-REF - With PC-REF, you will become an active partner in your treatment decisions, not merely an informed patient.
  Web Link: http://www.pcref.org
• Prostate Forum - Dr.Charles E. (Snuffy) Myers' Prostate cancer newsletter. Sample issue and lots of good information here.
  Web Link: http://www.prostateforum.com

• Radiation IMRT - Dr. Glen Gejermanin of Hackensack Hospital in Hackensack, NJ.
  Web Link: http://www.humed.com/prostate/expertise.shtml
• Seeds - Dr. John Blasko - Seattle Prostate Institute in Seattle, WA.
  Web Link: http://www.seattleprostateinst.com
• Seeds - Dr's. Frank Critz and Hamilton Williams - Radiotherapy Clinics of Georgia (RCoG) in Atlanta, GA.
  Web Link: http://www.rcog.net
• Seeds - Dr's. Gordon Grado and Haakon Ragde - Grado Ragde Clinics in Seattle, WA; Scottsdale, AZ; Glendale, AZ and Des Moines, IA.
  Web Link: http://www.gradoragdeclinics.com
• Seeds - Dr. Michael Dattoli - Dattoli Cancer Center in Sarasota, FL.
  Web Link: http://www.dattoli.com
• Temporary (HDR) Seeds - Dr Douglas Kelly - Cancer Treatment Centers of America in Tulsa, OK.
  Web Link: http://www.brachytherapy.com/prost-brachy.html
• Surgery - Dr. Patrick Walsh at Johns Hopkins.
  Web Link: http://urology.jhu.edu/faculty/walsh/index.html
• Surgery - Dr. Peter Scardino at Sloan-Kettering.
  Web Link: http://www.prostateaction.org/research/peter_scardino.html
• Surgery - Dr. William J. Catalona, Washington University Medical Center in St. Louis, Missouri and Medical Director of the Urological Research Foundation.
  Web Link: http://www.drcatalona.com/
  

Note that many lists have searchable archives which allow retrieval of useful topics which were covered in the past.

• Prostate Cancer Institute of New Jersey Discussion List - This discussion list will allow you to form a support community, exchange information on the latest treatment options and also pose questions to members of the Prostate Cancer Institute.
  Web Link: http://www.humed.com/prostate/onlinesupport.shtml
• PHML - Prostate Help Mailing List. This is a general Prostate Cancer mailing list that covers all aspects of Prostate Cancer. Don Cooley, who has put together the vast site noted above under "Internet sites", sponsors the list. Subscribe on the Internet at:
  Web Link: http://groups.prostate-help.org/grsubsc.htm#PHML
• PHCa-Advanced and Chemotherapy - Advanced is a mail group for those patients who have Prostate Cancer in an advanced stage. To subscribe, go to:
  Web Link: http://groups.prostate-help.org/grsubsc.htm#PHCaAd
• PHCa-Ladies - This group is for women to exchange information with each other about prostate cancer and how one copes with the disease individually and/or in the family. Subscribe on the Internet at:
  Web Link: http://groups.prostate-help.org/grsubsc.htm#PHCaLad
• PHCa-Veterans - A mailing list dedicated to the needs of PCa patients who are veterans. Focus on Vietnam vets but other veteran issues are covered. To subscribe, go to:
  Web Link: http://groups.prostate-help.org/grsubsc.htm#PHCaVet
• CHB - Offers discussion for those interested in hormonal blockade. Includes: orchiectomy, medical hormonal blockade [lupron, flutamide, proscar, etc]. To subscribe, go to:
  Web Link: http://www.prostatepointers.org/mailman/listinfo/chb
• The Circle - The Circle is a mailing list and associated Web site offering support for wives, families, friends, and significant others of men with prostate cancer. Subscribe on the Internet
  Web Link: http://www.prostatepointers.org/circle
• EBRT - Offers discussion and support for patients interested in any form of radiation therapy. To subscribe, go to:
  Web Link: http://www.prostatepointers.org/mailman/listinfo/ebrt
• HAH - Humor And Healing (HAH) is a humor list for the online PCa community. Subscribe on the Internet at:
  Web Link: http://www.prostatepointers.org/mailman/listinfo/hah
• PHCa-Hormonal - Offers discussion for those interested in hormonal blockade. Includes: orchiectomy, medical hormonal blockade [lupron, flutamide, proscar, etc]. To subscribe, go to:
  Web Link: http://www.phcagroups.org/grsubsc.htm#PHCaH
• P2p - Physicians to Patients mail list. Dr. Stephen Strum and other physicians answer patient's questions in this on-line forum. Subscribe on the Internet at:
  Web Link: http://www.prostatepointers.org/p2p/pcd.html
• PPML - Prostate Problems Mailing List. A forum that discusses men's Prostate Cancer. The intent is to help patients and their loved ones understand their illness and make informed treatment decisions. Subscribe on the Internet at:
  Web Link: http://www.acor.org/prostate.html
• Promise - A mailing list for those grieving a loss. Also offers help and support to those with a spouse, partner, or family member in the last stages of life. Subscribe at:
  Web Link: http://www.prostatepointers.org/mailman/listinfo/promise
• PCAI - Prostate Cancer and Intimacy is an unmoderated mailing list for frank and open discussion of the sexual issues surrounding PCa. Subscribe at:
  Web Link: http://www.prostatepointers.org/mailman/listinfo/pcai
• PCAN - PCAN attempts to focus PCa activist discussion into a coherent voice. Subscribe on the Internet at:
  Web Link: http://www.prostatepointers.org/mailman/listinfo/pcan
• PHCa-Radiation - This group is dedicated to all forms of External Beam Radiation (EBRT) including conformal radiation, 3dEBRT and IMRT. To subscribe, go to:
  Web Link: http://www.phcagroups.org/grsubsc.htm#PHCaR
• RP - A mailing list dedicated to the needs and concerns of radical prostatectomy patients. Focuses on those who have already had an RP or have selected RP as their treatment. To subscribe, go to:
  Web Link: http://www.prostatepointers.org/mailman/listinfo/rp
• SeedPods - A mailing list for those interested in brachytherapy (radioactive seed implants). Subscribe on the Internet at:
  Web Link: http://www.prostatepointers.org/seedpods/index.html
• Spirit - Spirit is a mailing list for those who want to share spiritual support as they live with prostate cancer. To subscribe, go to:
  Web Link: http://www.prostatepointers.org/mailman/listinfo/spirit
• PHCa-Surgery - A List for those prostate cancer patients who are considering surgery as a treatment or wish to discuss the effects of treatment. To subscribe, go to:
  Web Link: http://www.phcagroups.org/grsubsc.htm#PHCaS
• WW - Discussion and support for patients interested in Watchful Waiting as a strategy for the management of prostate cancer. To subscribe, go to:
  Web Link: http://www.prostatepointers.org/mailman/listinfo/ww
  
  

  VI Links to On-line Support Sites